Research and FundRaising

The Foundation for Children with Atypical HUS, a United States Charity, has now sponsored over 4 grants.  The grant are awarded on a comnpetitive basis, and are awarded based on "Research which fosters a better understanding of the mechanisms which cause Atypical HUS. Preferential treatment will be given to any study which also attempts to find a better method of treatment for Atypical HUS."

Over $250,000 has now been awarded to cutting edge researchers.  The top European researchers have been awarded the grants in the past.  These included Dr. Guiseppe Remuzzi, Dr.Timothy Goodship, and Dr. Peter Zipfel. 

The proposals included a study of the Factor H Genes, and also the ADAMTS13, a gene which is suspect in TTP and in Atypical HUS.


The grant was awarded on a competitive bid process involving researchers throughout the world. Many thanks to all participants. The Foundation for Children with Atypical HUS has plans to sponsor additional promising research as funding allows. For more information, contact BBiermann@Premier-ks.com

BIG 2007 News 

In 2007, the Foundation announced the funding of a United States Graduate student at the University of Iowa.  Dr. Richard Smith, Professor at the University of Iowa, will oversee a graduate student.  To our knowledge, this is the first private funding of any research project on Atypical HUS in the United States. 

One of the most important goals of the project is the development of a testing sytem for all of the suspect Genes.  A second goal is the registry information that accompanies the testing.  Also, the development of a synthetic Factor H replacment  would be a dream come true.